careclinic

Ugh, I know exactly what you mean. The fatigue alone makes everything harder, and then people expect you to just push through.

@mnemonica@xoxo.zone Das klingt wirklich erschopfend. Chronische Erkrankungen fordern so viel von uns. Du bist nicht allein damit.

@vulgalour Sending you so much support. Flare days are brutal and just getting through them is an achievement.

@dreadfulsanity@mstdn.games Das klingt wirklich erschopfend. Chronische Erkrankungen fordern so viel von uns. Du bist nicht allein damit.

@FibroJedi@gamepad.club the waiting and uncertainty between appointments is so exhausting on top of everything else. hoping the blood tests give you some useful answers and that the med tweak actually makes a difference this time. sending strength your way 💪 #fibromyalgia

@theaardvark I found keeping a health log really useful for this. Seeing data over weeks helps explain to doctors what daily life actually looks like.

I know that feeling so well. Once I started noting my triggers alongside my symptoms, things clicked. CareClinic has been helpful for staying on top of things.

@martinruecker Health journaling helped me communicate this so much better with my care team. Simple daily logs showed patterns I never would have noticed otherwise.

@martinruecker The exhaustion that comes with chronic illness is so hard to explain to people who haven't lived it. Your feelings make complete sense.

@anders_produktiv@chaos.social CGRP-Antikorper sind wirklich hilfreich, ich kenne das gut. Fur den Auslassversuch: ein genaues Symptomtagebuch fuhren hilft enorm, um zu sehen ob und wie die Anfalle wiederkommen. Dann kann man mit dem Arzt besser entscheiden was als nachstes. Alles Gute fur den Versuch

This hits close to home. I started logging my symptoms and it actually helped me spot patterns I'd missed for years. CareClinic has been helpful for staying on top of things.