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C.H. Romatowski

@Romatowski@mastodon.social

mastodon 4.8.0-nightly.2026-10-06

Editor, translator, filmmaker. Recovering academic. Leftist. Perfumista. ME/CFS, MCAS, POTS. EN/FR. She/they. DMV.

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8 Posts

Joined October 31, 2022

C.H. Romatowski @Romatowski@mastodon.social

· 34mo ago

Today leading advocacy orgs and researchers sent a letter calling on President Biden to include #LongCovid and related diseases like #MECFS, #POTS and #MCAS in the next federal budget.

Now there’s an option for patients and allies to add our names well—super quick way to lend support!

Please sign, please share!

https://patientresearchcovid19.com/advocacy/letter-to-president-biden-fy25-budget/

mastodon.social

Mastodon

C.H. Romatowski @Romatowski@mastodon.social

· 39mo ago

Replying to

@yuhline Yeah, it’s really a shame onboarding wasn’t more streamlined at the critical juncture when people were first encountering the fediverse, because once you’re here this is a MUCH better experience.

C.H. Romatowski @Romatowski@mastodon.social

· 29mo ago

Replying to

Huge thank you to everyone who’s shared and written—already more than 1300 messages sent and one more day to ask your Senators to add their names to a request for #LongCovid and related diseases like #MECFS and #POTS to be included in the FY25 budget! If you have friends or family you could ask to send this 1-minute email too, that would also be a huge help! https://actionnetwork.org/letters/long-covid-research-funding-in-the-fy25-budget

actionnetwork.org

C.H. Romatowski @Romatowski@mastodon.social

· 41mo ago

Replying to

@yuhline It’s too much, I don’t know what to say. If anyone is looking, GFM lists a fundraiser for him as verified: https://www.gofundme.com/c/act/allen-texas-mall-shooting-help

GoFundMe

How to Help: Allen, Texas Mall Shooting

You can help the individuals and families affected by the Allen, Texas mall shooting by donating to verified fundraisers

C.H. Romatowski @Romatowski@mastodon.social

· 10mo ago

RE: @patientled@mastodon.social

So grateful to the community’s generosity in sustaining Patient-Led Research Collaborative’s pathbreaking work on Long Covid and related diseases like ME/CFS. It’s such a source of hope to me.

If you’re in a position to continue your support, your donations will be doubled through the end of the year!

mastodon.social

C.H. Romatowski @Romatowski@mastodon.social

· 29mo ago

@dancingdogs@forall.social Thank you, yes fine here—hoping you are too! That sample set sounds fun!

C.H. Romatowski @Romatowski@mastodon.social

· 33mo ago

@dancingdogs@forall.social Happy New Year to you! That’s a fantastic book! Have you also read the Emperor of Scent? (I haven’t, yet)