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El: spoons? What spoons?

@El_@kind.social
mastodon 4.7.3
  • Open on kind.social

:SpoonsOutlined: :neurodivergent: :HeartNonbinary: :BlahajProgPride: :BlahajTrans:

Nonbinary transmasc, Autistic with ADHD, Xennial dreamer in South Wales, UK. Easily-distracted crafter, currently mostly resting.

Avatar: El, a white person, in the sunshine, wearing a dark grey baseball cap and reflective blue sunglasses

Header: Bright blue sky with fluffy white clouds

417 Followers
528 Following
16 Posts
Joined July 08, 2023
Pronouns:
they / them
Blog:
https://oosoom.dreamwidth.org/
Open post
El: spoons? What spoons? @El_@kind.social
· 6mo ago
Replying to
Told my talking therapist today about my rocking chair, and it's now part of one of my action points. When I need to check in with my emotional self, figure out what I'm feeling, and let myself feel my feelings, I'm now to: "Take it to the chair" 🤭 I've preemptively put beside the chair a care basket with handkerchiefs, water, and snacks.
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Open post
El: spoons? What spoons? @El_@kind.social
· 5mo ago

Vote!

Please. Thank you.

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Open post
El: spoons? What spoons? @El_@kind.social
· 7mo ago

My Personal Independence Payment application form arrived 2 days ago.

Even though I'm the one who started this new application, I've used my (limited) available energy on cleaning instead of opening the envelope.

I don't want to do this but I know I need to do this.

Spouse is on rest days for a couple of days, so he will help. And I've counselling soon, so I can deal with these feelings.

I'm guess I'm sharing this for accountability, and because it's hard and I know so many of you can relate

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Open post
El: spoons? What spoons? @El_@kind.social
· 6mo ago

UK disabled folk, carers, and other interested parties, there is to be a review of the Personal Independence Payment system, and there is an open call for evidence. The details are on this page:

https://www.gov.uk/government/calls-for-evidence/timms-review-of-personal-independence-payment-call-for-evidence

There is a link towards the bottom of the page to a form for submitting evidence, and an email address for submitting evidence in other formats.

Call for evidence closes 28th May 2026.

#UK #PersonalIndependencePayment #Disability #UKDisability #UKBenefits #DWP #TimmsReview

Timms Review of Personal Independence Payment: call for evidence
GOV.UK

Timms Review of Personal Independence Payment: call for evidence

This call for evidence is being administered by DWP on behalf of the Timms Review steering group and seeks to gather feedback and insight relating to the areas outlined in the Terms of Reference of the Review.

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Open post
El: spoons? What spoons? @El_@kind.social
· 6mo ago
Replying to
A silly pun on the above: The mountain is mist (missed.)
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Open post
El: spoons? What spoons? @El_@kind.social
· 8mo ago

In therapy today I learned about the window of tolerance, and about how a mind that has spent a long time outside that window may struggle to stay within that window.

I have more thoughts on this - and a half-formed analogy involving my inner goblin starting fires - but my brain needs to sleep again so they'll have to wait. I'll add a content warning so I can come back to this at some point.

If you have thoughts on this topic, feel free to comment 💜

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Open post
El: spoons? What spoons? @El_@kind.social
· 5mo ago

I downloaded a couple of apps that were recommended on the AuDHD Flourishing podcast episode about alexithymia - Animi, and How We Feel.

I've only tested them briefly, but I'm not sure they'll work for me. Perhaps I'm judging too soon, but...

1/

#Alexithymia

kind.social
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Open post
El: spoons? What spoons? @El_@kind.social
· 7mo ago
Replying to
Also, I have 2 weeks left to complete this form and organisations have a month to respond to SARs. So, Spouse is going to have to request an extension on the application time for me. When PIP was stopped last time, it broke me. Why am I putting myself through this again? /rh Please excuse me. I need a break from screen time, and a nap. 4/?
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Open post
El: spoons? What spoons? @El_@kind.social
· 8mo ago

Link below references SI, world events.

The AuDHD Flourishing podcast posted an episode titled Surviving Out of Spite, and I found it helpful, so I'm sharing it with all y'all lovely Fedizens in case you or someone you know might find it helpful too.

https://shows.acast.com/audhd/episodes/6961755888da0c07c1c911cc

shows.acast.com
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Open post
El: spoons? What spoons? @El_@kind.social
· 7mo ago
Replying to
Among the missing conditions and actions are: • my diagnosed depression and anxiety, • my fatigue diagnosis, • the reason I take anti-vertigo meds, • my repeated attempts to get physio through the surgery, • the results of my eventual self-referral to hospital physiotherapy, • my referral to Occupational Therapy and results of that, • and my Atrial Fibrillation diagnosis and ongoing care plan. No wonder I lost PIP last time. 2/
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Open post
El: spoons? What spoons? @El_@kind.social
· 7mo ago
Replying to
I'm going to have to do Subject Access Requests (SAR) again, for both the GP surgery and the hospital trust, and be firm about it this time, and then find out how to get all that missing information added into my patient file. This is energy that I should be spending on self care, on working on independence, on trying to boost my energy levels. 3/
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Open post
El: spoons? What spoons? @El_@kind.social
· 10mo ago

I think one of our jackdaws has a pet pigeon.

The jackdaw is giving every third or fourth peck from the coconut feeder to a pigeon perched nearby.

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Open post
El: spoons? What spoons? @El_@kind.social
· 12mo ago

@AnAutieAtUni@beige.party

The Occupational Therapist also said they'd follow up in some months to see if there's anything else they could do to support me - such as connecting me with relevant support groups or social groups, or signposting relevant voluntary work. (I miss working.)

And they offered signposting support to Spouse, too, as he is my carer.

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Open post
El: spoons? What spoons? @El_@kind.social
· 12mo ago

@AnAutieAtUni@beige.party

I can't remember the right words for some today; I'll take photos when I'm able.

• A cage for the toilet. It has arms now. I love it.
• A bath seat that lifts and lowers and that I am looking forward to trying.
• A corner shower stool.
• A "bed lever" raised grab handle that is at the side of the bed and secured under the mattress. I love it.
• A raised kitchen seat with arms so I can sit safely at counter height.
• A commode for the ground floor of our house.

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