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kate

@haven4books@disabled.social
mastodon 4.7.3
  • Open on disabled.social

Library ghost with a love of SFF.

Often low on energy due to #MECFS--may be slow to respond. #CripTime

#NEISvoid #Disabled #pwME #EDS #POTS

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HEADER: Two sculptures facing each other against a background of tress. Sculptures: white letters shaped & connected to look like humans sitting facing one another, with faces not filled in, suggesting openness.

0 Followers
63 Following
5 Posts
Joined November 11, 2022
Open post
kate @haven4books@disabled.social
· 38mo ago

When you're a #pwME, it far too often feels like the opinions offered by docs were written by AI, sourced from none of the literature about #MECFS, full of errors and prejudices, and containing danger in some circumstances.

Those wonderful docs who listen and research and check their biases, and know the history, are like veteran writers who rigorously check sources, read works that challenge and upend their thinking, and care about the quality they produce.

#NEISvoid @mecfs@a.gup.pe

disabled.social

disabled.social

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Open post
kate @haven4books@disabled.social
· 34mo ago

Article from Dec 2020:

"A century of COVID-19: what history tells us about the long-term effects of a pandemic"

https://gero.usc.edu/2020/12/08/century-covid-pandemic-risk/

“The fact that this cohort of people had elevated risks of disease even more than six decades after the pandemic indicates that maternal exposure to the infvirus appears to have had wide-ranging and long-lasting health effects on offspring"

#1918Flu #longCOVID #MECFS #COVID19 #Influenza #H1N1 #longFlu #NEISvoid #pwME

gero.usc.edu
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Open post
kate @haven4books@disabled.social
· 47mo ago
Replying to
@Tinu@mastodon.social Images in a CW post are automatically marked as sensitive content by the software. That post doesn't have a CW, though, so.... yeah.
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Open post
kate @haven4books@disabled.social
· 37mo ago

A new #PeopleOverProfits campaign has begun in #Nerdfighteria. This time the focus is price-gouging on tuberculosis tests, leading to hundreds of thousands of deaths for a curable disease.

See the video for and overview 👇🏼

Additional info: tbfighters.org

Background on Danaher, who their board members are, shareholders, etc:
https://www.marketscreener.com/quote/stock/DANAHER-CORPORATION-12295/company/

How will you help?

#TimeFor5

https://www.youtube.com/watch?v=tSC06P9A5W4&t=505s

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Open post
kate @haven4books@disabled.social
· 47mo ago
Replying to
@PanickedFoodie@disabled.social I'm definitely No for companies, and soft no for advocacy orgs. I'd like to see the advocacy orgs set up elsewhere and show us who they are before letting them in our space. And even then, I dunno. It makes more sense for anything not patient led to be on a less specific instance to do advocacy work. And allowing them here lends credibility of the disability community to the org. I'd never want that for places like the EDS Society.
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